Update. Life is Good!

It has been four years since my last post, but I thought it would be important to update people who once in awhile come across this blog and read about our journey with Moyamoya. Moyamoya husband is doing amazing, surfing, skating, hiking and running his company. This year we welcomed a baby girl who has become our entire world. Last fall we had our 3 year check-up with Dr. Steinberg at Stanford and we were given the great news that we would not have another check-up (which includes angiograms, ct scans, etc) for another 7 years! I think this shows how much progress can be done with this condition. We know our lord and savior Jesus Christ helped lead us to an amazing team at Stanford and we hope that we can share our journey with others. In the beginning it can all be very scary, but we hope our story shows that their is amazing things that can be done. Each journey is different, but I am happy to answer questions and share our story.

Blessings,  moyamoya wife. 

MoyaMoya Husband's First Post From The General Population...

Moyamoya husband's first post!!!!



Hello everyone! FINALLY I have been allowed communication with the outside world..the ICU nurses are very keen about issuing good feeling drugs ever 2 hours, but definitely not too cool with patients talking on cell phones, texting or tick-tacking at a computer.

So the big question I keep getting asked is: "How do you feel?" Well, amazing, I am NOT in much pain. My mild discomfort basically comes from the incision that the docs made on the left side of my head. By my estimate, I have about 10 staples in my head, and 3 little titanium plates to hold the bone together. Bionic brain! So it is all this internal and external hardware that requires Vicadine or Fentadol.

Aside from the normal passing of the “healing hours” I am told that my recovery has been going very, very well. Dr. Stienberg, my awesome brain surgeon, paid me a visit directly after my procedure yesterday. He said that the blood flow in my head BEFORE surgery had been a 1 out of 26 (which doesn’t sound that pleasing); but now, AFTER my surgery, the blood flow has increased to 26 of 30 (which sounds much, much more pleasing). I am waiting for my X-ray vision to kick in, but no dice just yet…

Ok, that’s all for now – its time for another cat nap for dinner.