10 Year Check-up

 10 Year Check-up with Dr. Steinberg and the Renown Stanford Medical Team

October 13, 2020

In two weeks we head to Stanford for my husband's 10-year check-up. In the last seven years since our visit with Dr. Steinberg, we have been blessed with two beautiful daughters. I am so grateful to the Lord and Savior for guiding us every single step of the way. 10 years of a beautiful, wonderful life! 10 years and I can reflect on how far we have come since my husband's diagnosis in 2009. For anyone diagnosed with this disease, know there is hope, there is joy and there is so much life ahead. Praise GOD we found Dr. Steinberg and his team. Thank you for our life. WE LOVE BIG. Really what else matters than the love for God and others. I pray our upcoming visit is amazing as I am sure the holy spirit will be with us the whole time. God Bless...To our next ten years, and the next and the next and the next .... 

Update. Life is Good!

It has been four years since my last post, but I thought it would be important to update people who once in awhile come across this blog and read about our journey with Moyamoya. Moyamoya husband is doing amazing, surfing, skating, hiking and running his company. This year we welcomed a baby girl who has become our entire world. Last fall we had our 3 year check-up with Dr. Steinberg at Stanford and we were given the great news that we would not have another check-up (which includes angiograms, ct scans, etc) for another 7 years! I think this shows how much progress can be done with this condition. We know our lord and savior Jesus Christ helped lead us to an amazing team at Stanford and we hope that we can share our journey with others. In the beginning it can all be very scary, but we hope our story shows that their is amazing things that can be done. Each journey is different, but I am happy to answer questions and share our story.

Blessings,  moyamoya wife. 

Day 4: Release from the recovery room

After a very successful 3rd night in the hospital, MoyaMoya Husband was cleared by his doctors for release on Saturday, 9/19/09! The USC vs. Washington game was on that day, and some of his friends flew in just time to watch the game with him at his apartment. The first non-hospital meal? As much pizza as everyone could stuff down them :).

NOTE: Standford medical center has an AWESOME housing assistance program for patients and family who need to stay near the hospital for treatment. Talk to your doctor about getting setup with the Assistance League of Los Altos - they help many families in need of long term, fully furnished a apartments.

Zipper Unveiled

So Day Two!!! He's doing so great surrounded by USC gifts he is in great spirits. His bandage came off and you can see his staples...he walked last night. Dr. Steinberg came and visited us at 10pm last night and told us we can leave Saturday - just four days in the hospital that is great news...he says Moyamoya husband looks amazing for just having surgery 2 days ago...He had part of his hair "dry shampooed" and styled by a nurse...I guess it beats the 80.00 cut and color at our local salon! Pictures below!

Recovery Pics - Post Op, Stanford

By end of day one out of surgery moyamoya husband has more swelling...it will get bigger tomorrow and then by day 4 should go down...all is good mri looks really good - more tests will monitor new blood flow and any potential stroke threat which is a side effect of the sugery (but low chance) all looks really good....another tube removed tonight! Yeah down to 3 tubes...

MoyaMoya Husband's First Post From The General Population...

Moyamoya husband's first post!!!!



Hello everyone! FINALLY I have been allowed communication with the outside world..the ICU nurses are very keen about issuing good feeling drugs ever 2 hours, but definitely not too cool with patients talking on cell phones, texting or tick-tacking at a computer.

So the big question I keep getting asked is: "How do you feel?" Well, amazing, I am NOT in much pain. My mild discomfort basically comes from the incision that the docs made on the left side of my head. By my estimate, I have about 10 staples in my head, and 3 little titanium plates to hold the bone together. Bionic brain! So it is all this internal and external hardware that requires Vicadine or Fentadol.

Aside from the normal passing of the “healing hours” I am told that my recovery has been going very, very well. Dr. Stienberg, my awesome brain surgeon, paid me a visit directly after my procedure yesterday. He said that the blood flow in my head BEFORE surgery had been a 1 out of 26 (which doesn’t sound that pleasing); but now, AFTER my surgery, the blood flow has increased to 26 of 30 (which sounds much, much more pleasing). I am waiting for my X-ray vision to kick in, but no dice just yet…

Ok, that’s all for now – its time for another cat nap for dinner.

Pictures! Day One