It has been four years since my last post, but I thought it would be important to update people who once in awhile come across this blog and read about our journey with Moyamoya. Moyamoya husband is doing amazing, surfing, skating, hiking and running his company. This year we welcomed a baby girl who has become our entire world. Last fall we had our 3 year check-up with Dr. Steinberg at Stanford and we were given the great news that we would not have another check-up (which includes angiograms, ct scans, etc) for another 7 years! I think this shows how much progress can be done with this condition. We know our lord and savior Jesus Christ helped lead us to an amazing team at Stanford and we hope that we can share our journey with others. In the beginning it can all be very scary, but we hope our story shows that their is amazing things that can be done. Each journey is different, but I am happy to answer questions and share our story.
Blessings, moyamoya wife.
